At this stage of my journey charting the ups and downs of neurodivergent family life, I felt it might be useful to share our journey of discovery into each of our childrens’ (and my husband’s) autism and ADHD in the first place.
Sam spent most of his early life screaming and clawing at my face whenever I held him. He never crawled. Rather, he bum-shuffled his way around the world until he decided to walk at around eighteen months.
And if anyone bent down to Sam’s pram to say hello to this little bundle of joy, he would growl.
On one holiday, at around a year old, Sam bum-shuffled under our caravan where he stayed put for a good half hour happily (and intentionally) bashing his head against the metal undercarriage, blissfully unreachable by any of us.
Autism, schoolfriends, clubs and playdates
As he got older, Sam made friends; but it took concerted effort on my part to develop and maintain these friendships — getting to know mums at the school gate, inviting children back to play, signing Sam up to Beavers and after-school clubs and, basically, ensuring his life included socialisation. Often, I played more of a part in his playdates than he did, with ‘organised fun’ ready for when his social battery ran out. Happily, at that age, his little friends, mostly indifferent to Sam zoning out and watching dinosaur documentaries by himself, would happily carry on entertaining themselves.
At school, his big sister reported he would often ‘play’ by himself in the mud — the mud and stones acting as the characters, while he muttered the lines they said to each other as he reenacted scenes in his head. At home, he did the same with lego figures for hours in his room — seemingly needing to act out what he saw or thought as a way of processing.
In those days, I was often called on to stay behind and talk to Sam’s teacher — about the loud and distracting animal noises he made during carpet time, or the occasion when he was ‘being a dinosaur’ and ripped a classmate’s expensive new coat while ‘eating him’. It wasn’t bad behaviour. In that moment, Sam was a dinosaur. Most likely what went through his head in that moment was, ‘I’ve caught this stegosaurus. I better rip him up before he gets away’. Alternatively, there might have been nothing running through his head — just the adrenaline of having caught his prey. What definitely didn’t go through his head was, ‘hmmm, biting this kid’s coat might actually rip it. Never mind, I’ll do it anyway’, as both the teacher and the mum of the other boy seemed to suggest.
Autistic realisation
For Sam, the gradual dawning that perhaps his mind worked a little differently and that banter — a vital skill to master in Year 6 — was a mystery to him, coincided with I’m a Celebrity fever gripping his school and, in particular that year, Anne’s frolics and foibles as an openly autistic contestant. Sam’s classmates, like most of the nation, liked Anne but, as the children around him discussed what Anne had said and done, Sam recognised something of himself.
Unfortunately for Sam, the realisation hit just as the class lined up for registration, and all I had time for was a quick reassurance that he might be (he was undergoing assessment at the time), that was fine and that we’d talk about it after school. I spent all day worrying but, when we spoke that evening, Sam took it all in his characteristic stride and seemed relieved to know why he saw the world differently — as was confirmed with his positive diagnosis a couple of weeks later.
Today, after a tricky but, unlike his brother, not quite soul-destroying, time at secondary school, Sam is now training to be an electrician — the practical element of the learning suiting him much better. And, while he still definitely needs ‘alone time’ and only really has one close friend, at the age of 18, he’s recently discovered alcohol as the great leveller in social situations (more on that in another post) — and is actually enjoying the experience of going to the pub sometimes.
But if Sam’s difference was visible from the beginning, his younger brother, Oliver, was the opposite. Where Sam was steady and inward, Oliver was excitable and loud. His challenges didn’t arrive all at once; they crept in through the cracks, only becoming visible when the world began asking more of him than he could give…
More on that in my next post.





